23andMe IPF Research Study

23andMe

Status: Active, not recruiting

Conditions: Idiopathic Pulmonary Fibrosis

Treatments: Other: No intervention

Study type: Observational

Funder types: Industry

Identifiers

NCT05028894

23andMe_IPF001

Details and patient eligibility

About

The long term goal of this study is to increase genetic understanding of IPF to enable the development of an effective drug for IPF that can improve the lives of those living with the condition.

Full description

This study will recruit 1,000 people who have been diagnosed with IPF or Hermansky-Pudlak syndrome (HPS). Eligible participants who consent to participate in 23andMe Research and the IPF Research Study will receive a 23andMe Health + Ancestry kit at no cost. Participants will provide a saliva sample and take a baseline survey online answering questions about their disease diagnosis, testing, treatment, and symptoms. Participants will also be asked to take the same survey 3, 6, and 9 months after completing the baseline survey. The data collected from this study will be incorporated into the 23andMe Database and used to better understand the underlying genetic and environmental factors that contribute to IPF.

Enrollment: 690 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Have been diagnosed with IPF or Hermansky-Pudlak syndrome (HPS)
• Are 18+ years old
• Live in the US

Exclusion criteria

- Have been diagnosed with sarcoidosis or hypersensitivity pneumonitis

Trial design

690 participants in 1 patient group

IPF

Description:

Participants diagnosed with idiopathic pulmonary fibrosis

Treatment:

Other: No intervention