A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

University Hospital Southampton NHS Foundation Trust

Status: Enrolling

Conditions: Primary Ciliary Dyskinesia (PCD)

Treatments: Other: Interview only

Study type: Observational

Funder types: Other

Identifiers

NCT07357558

RHM O&G0332

Details and patient eligibility

About

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

Enrollment: 30 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Lives in United Kingdom
• 'likely' or 'confirmed' diagnosis of PCD
• able and willing to sign the consent form

Exclusion criteria

• unwilling to participate in the study
• not meeting inclusion criteria