A Research Registry on Aggressive PitNETs (RECAPitNETT)

Civil Hospices of Lyon

Status: Enrolling

Conditions: Endocrine Tumor

Study type: Observational

Funder types: Other

Identifiers

NCT05974696

69HCL23_0026

Details and patient eligibility

About

To allow the identification of markers, it is necessary to extend research networks more widely to collect and properly explore aggressive pituitary tumours. The multidisciplinary consultation meeting (RCP), organised by the reference centre for rare diseases of the pituitary gland, dedicated to aggressive pituitary tumours and carcinomas (HYPOcare), which is unique in France and brings together national experts, currently makes it possible to orientate the management of patients with an aggressive pituitary tumour. With more than 80 patient files discussed since its inception, the patient cohort via the HYPOcare RCP is one of the largest both nationally and internationally. At present, this data source is only dedicated to the clinical management of the files without the possibility of carrying out research work

Enrollment: 200 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

• Inclusion Criteria :

  • Patients with a diagnosis of pituitary tumour
  • Patients whose file has been presented to the national HYPOcare RCP

• Exclusion Criteria :

  • Patients objecting to participating in this research

Trial design

200 participants in 1 patient group

Patients RECAPitNETT

Description:

All adult subjects with pituitary tumours whose file is presented to the national HYPOcare RCP. There is only one group.