Access to Pediatric Rheumatology Centers for JIA Patients: Factors Associated With Time to Access Pediatric Rheumatology Centers (AJILITT)

University Hospital, Clermont-Ferrand

Status: Enrolling

Conditions: Juvenile Idiopathic Arthritis

Treatments: Other: semi-structured interview

Study type: Observational

Funder types: Other

Identifiers

NCT05696340

2022 CHAUSSET AJILITT

Details and patient eligibility

About

JIA patients, their parents, and the health care professionals experience the complexity of the initial care pathway. The aim of the study is to explore the referral pathway to access pediatric rheumatology centers for JIA patients. The exploration will aim to identify the barriers and facilitators of referral, based on the conceptual framework of the health literacy. The investigators will conduct a qualitative study using semi-structured interviews. The perspectives of parents/children/health care professionals will be crossed to enrich the data.

Enrollment: 45 estimated patients

Sex: All

Ages: 11+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

Children:

• age > 11 years
• JIA diagnosed between 4 and 24 months prior to the start of the study

Parents:

• parent of a child with JIA diagnosed between 4 and 24 months prior to the start of the study

Health care professional:

• Physician with experience in the initial management of children with JIA (between symptom onset and first visit with a pediatric rheumatologist).

Exclusion criteria

For all participants:

• Refusal to participate in interviews
• Presenting a health condition incompatible with an interview
• Participants with inadequate French to take part in semi-structured interviews

Trial design

45 participants in 3 patient groups

JIA patients

Description:

Children diagnosed with JIA between 4 and 24 months before the start of the study, treated and followed in a pediatric rheumatology center (old enough to answer the questions)

Treatment:

Other: semi-structured interview

Parents of JIA patients

Description:

Parents of a child diagnosed with JIA between 4 and 24 months prior to the start of the study (treated and followed in a pediatric rheumatology center)

Treatment:

Other: semi-structured interview

Health care professionals

Description:

Physician with experience in the initial management of JIA patients (between symptom onset and first visit with a pediatric rheumatologist)

Treatment:

Other: semi-structured interview