Adaptation of a Knowledges Exchange Portal Between (KEP) Healers and Patients : Obstacles and Sources to KEP Use for Breast Cancer Women (Sav-AQ)

University Hospital of Bordeaux

Status: Completed

Conditions: Breast Cancer

Treatments: Other: web portal: " Mon réseau cancer du sein " ("My Breast cancer Network")

Study type: Observational

Funder types: Other

Identifiers

NCT03472794

CHUBX 2016/19

Details and patient eligibility

About

The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway. The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context

Full description

One of the French Cancer Plan 2014-2019 objectives is to improve the town-hospital coordination and information's exchange between professionals. This research project aims to reach this important objective of exchange development and the amelioration of the coordination concerning breast cancer women. Breast cancer requires the integration of aggressive treatments implying physical, psychological and social consequences. That's why an optimized care pathway needs a coordinated and multidisciplinary organization, and more particularly a personalized approach taking into account the whole patients' needs in physical, psychological and social perspectives. To reach this goal, it is important to support those patients, to answer their needs for a better disease management in their own health pathways. The research issues lie in this outcome.

The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway.

The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context

Enrollment: 35 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion and exclusion criteria

Inclusion criteria of patients :

• Age ≥ 18 y.o;
• With a diagnosis of breast cancer,
• treated at the Bergonié Institute;
• Patients who express a non-opposition to participate to SAVAQ research;
• Patients who have an Internet access at home.

Inclusion criteria of healers :

• Doctors, Nurse, Senior health manager, Technologist medical imaging from the center participated to the research

Exclusion criteria of patients:

• Patients with a severe psychiatric pathology (medical diagnosis);
• Patients who doesn't speak French