Admission of Adult-onset Still Disease Patients in the ICU (Still-ICU)

Central Hospital, Nancy, France

Status: Completed

Conditions: Critically Ill; Adult-Onset Still Disease

Treatments: Other: data collection

Study type: Observational

Funder types: Other

Identifiers

NCT03276650

PSS2017/Still-ICU-LEMARIE/VS

Details and patient eligibility

About

Since its first description in 1971, diagnosing adult-onset Still's disease (AOSD), a rare multisystemic disorder considered as a multigenic autoinflammatory syndrome, remains challenging. Rarely, AOSD may present severe systemic manifestations and require intensive care. The main purpose of the Stil ICU study is to make the first description of the epidemiology of critically ill AOSD patients. The investigators will use a retrospective cohort study design with dual recruitment strategies: (1) via the AOSD referral centres network and (2) via a French academic medical ICU network.

Enrollment: 45 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• AOSD (history of newly diagnosed)
• ICU admission between January 2001 and June 2017

Exclusion criteria

• adults under protection
• admission in step-down unit

Trial design

45 participants in 1 patient group

critically ill AOSD patients

Description:

no intervention Data collection from hospitalisation reports (administrative, biological, clinical, outcome)

Treatment:

Other: data collection