Adolescent and Young Adult Cancer Survivors: Identity Development

Memorial Sloan Kettering Cancer Center (MSK)

Status: Active, not recruiting

Conditions: Cancer

Treatments: Behavioral: Questionnaire; Behavioral: interview; Behavioral: Focus groups

Study type: Observational

Funder types: Other

Identifiers

NCT00832325

09-001

Details and patient eligibility

About

The purpose of this study is to better understand how the illness has affected the identity and what needs the survivor may have. We hope that this information will help us provide better care to future adolescent and young adult cancer survivors.

Enrollment: 300 estimated patients

Sex: All

Ages: 15 to 25 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Current age greater than and including 15 and up to and including 25 years of age at time of consent
• Diagnosis of a first cancer > or = to 14 and up to and including 21 years of age
• At least 6 months post-treatment according to participant's self-report.
• Able to provide informed consent (or parent or legal guardian consent and participant assent for those participants under 18 years of age)
• Able to speak English. This inclusion criterion is included because study assessments were designed and validated in English and many of them are not currently available in other languages. Translation of questionnaires into other languages would require reestablishing the reliability and validity of these measures. Therefore, participants must be able to communicate in English to complete the assessments.

Exclusion criteria

• Will exclude survivors with severe cognitive impairment that precludes them from being able to give information consent and/or complete the questionnaires.

Trial design

300 participants in 3 patient groups

1 individual interviews

Description:

The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in an individual interview at their convenience.

Treatment:

Behavioral: interview

2 Focus Groups

Description:

The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in a focus group at their convenience.

Treatment:

Behavioral: Focus groups

3 Questionnaire

Description:

The patient will be asked to participate in three 60-90 minute telephone interviews scheduled at their convenience.

Treatment:

Behavioral: Questionnaire