Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Forbes Norris MDA/ALS Research Center

Status: Completed

Conditions: Amyotrophic Lateral Sclerosis

Treatments: Behavioral: ALS Registry

Study type: Observational

Funder types: Other

Identifiers

NCT00302198

23.112

Details and patient eligibility

About

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Full description

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Enrollment: 15,000 estimated patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.