An Electronic Personal Health Record for Mental Health Consumers

Emory University

Status and phase: Completed; Phase 3

Conditions: Chronic Comorbid Conditions

Treatments: Other: personal electronic medical record

Study type: Interventional

Funder types: Other; Other U.S. Federal agency; NIH

Identifiers

NCT01724125

IRB00012759

1R18HS017829 (U.S. AHRQ Grant/Contract)

Details and patient eligibility

About

Electronic Personal Health Records (PHRs) hold promise in helping reshape healthcare by shifting the ownership and locus of health records from being scattered across multiple providers to an approach that is longitudinal and patient-centered. Given the complex health needs and the fragmentation of care for persons with serious mental illnesses, these individuals could derive particular benefit from a PHR. However, there are currently no established PHRs developed for use in this population.

In order to fill this gap, the investigators propose to develop, test, and disseminate a Personal Health Record for persons with serious mental illnesses and one or more comorbid medical condition. The Mental Health PHR (MH-PHR) builds on an established personal health record which was developed in partnership with medical consumers and is in wide use in a number of communities in the United States and abroad.

Enrollment: 170 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

1. Currently in treatment at the CMHC.
2. Serious Mental Illness: based on or chart review;
3. One or more Chronic Medical Condition as ascertained via administrative records.

Trial design

Primary purpose: Health Services Research

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

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170 participants in 2 patient groups

Case

Experimental group

Description:

Assigned a Personal Electronic Health Record

Treatment:

Other: personal electronic medical record

Control: Usual Care

Active Comparator group

Description:

Assigned to control arm, continued to receive care as usual in community. Was issued information on community health resources, but did not use research study personal health record.

Treatment:

Other: personal electronic medical record