Angelman & Rett Syndrome: Interaction and Communication

Universitaire Ziekenhuizen KU Leuven

Status: Completed

Conditions: Behavior, Child; Parent-Child Relations; Communication

Treatments: Behavioral: Observation; Behavioral: Parental experiences

Study type: Observational

Funder types: Other

Identifiers

NCT03720028

Snummer

Details and patient eligibility

About

We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.

Enrollment: 20 patients

Sex: All

Ages: 1 to 14 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Angelman or Rett syndrome

Exclusion criteria

• none

Trial design

20 participants in 2 patient groups

Child w Angelman/Rett syndrome

Description:

Children with Angelman or Rett syndrome, up to 14 years of age

Treatment:

Behavioral: Observation

Parent

Description:

Parents of Children with Angelman or Rett syndrome

Treatment:

Behavioral: Parental experiences