Antenatal Palliative Care (SPAN)

Civil Hospices of Lyon

Status: Completed

Conditions: Fetal Anomaly; Fetal Death

Treatments: Behavioral: Semi-structured interviews

Study type: Observational

Funder types: Other

Identifiers

NCT03795857

69HCL18_0371

Details and patient eligibility

About

In France, according to current legislation, termination of pregnancy could be performed without any upper gestational age limit, if there is a strong probability that the fetus will be affected by a particularly severe and incurable disease. When there is a lethal fetal diagnosis most of parents wish to terminate their pregnancy. However, and despite some medical resistance a few of them do wish to continue pregnancy. In these situations, palliative care seems to be a good way to prepare to welcome the child and surround him until death.

The aim of the study is to describe parents' experience for a better understanding and a better care.

Enrollment: 9 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• The woman must be between the ages of 18 and 50 and the adult,
• Participants must have received the information and not have objected to participating in the study,
• the lethal / adverse short-term prognosis of the fetal pathology must have been confirmed by a committee of experts (CPDPN),
• The choice to continue the pregnancy should have been clearly expressed,
• The birth of the child should not be older than 24 months.
• The child's death must be more than 6 months old (or not have occurred)

Exclusion criteria

• Non-mastery of the French language,
• Measure of legal protection of one of the members of the couple (guardianship, trusteeship, ...),
• Severe psychiatric or neurological disorders inducing significant cognitive impairment.