APPLICATION OF THERAPEUTIC PHOTOGRAPHY AND EXPRESSIVE WRITING IN THE MANAGEMENT OF PATIENTS WITH MARFAN SYNDROME (FOTOTEMA)

San Donato Group (GSD)

Status: Completed

Conditions: Marfan Syndrome

Treatments: Behavioral: Therapeutic photography and expressive writing; Behavioral: Expressive writing

Study type: Interventional

Funder types: Other

Identifiers

NCT06872268

FOTOTEMA

Details and patient eligibility

About

This study explores the efficacy of therapeutic photography and expressive writing as interventions in routine practice for patients with Marfan syndrome.

Full description

The objective of the study is to assess the feasibility of including structured therapeutic photography and expressive writing activities in routine practice as an adjunct to standard treatment for patients with Marfan syndrome in a national Reference Centre for Rare Diseases. This will include measuring the adherence rate to the programme and evaluating the subjective experience of the patients involved.

Enrollment: 8 patients

Sex: All

Ages: 13+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

Subjects with Marfan syndrome referred to the Cardiovascular genetic center in IRCCS Policlinico San Donato;

- Signed informed consent.

Exclusion criteria

• Patients who are currently going through a period of severe medical or psychological instability reported in medical history.
• Subjects who are unable to provide informed consent due to cognitive, language, or other limitations that prevent full understanding of the purpose and nature of the study.

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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8 participants in 1 patient group

Intervention group

Experimental group

Description:

Subjects with Marfan syndrome in follow-up at Cardiovascular Genetic Center, IRCCS Policlinico San Donato

Treatment:

Behavioral: Expressive writing

Behavioral: Therapeutic photography and expressive writing