Aquagenic Pruritus in Myeloproliferative Neoplasms (PANAM)

Regional University Hospital Center (CHRU)

Status: Completed

Conditions: Deciphering Aquagenic Pruritus in Myeloproliferaitive Neoplasms

Study type: Observational

Funder types: Other

Identifiers

NCT04018209

PANAM (29BRC19.0001)

Details and patient eligibility

About

Description of the characteristics of aquagenic pruritus expressed by patients suffering from myeloproliferative neoplasms.

Prospective work based on the distribution of a dedicated questionnaire.

Full description

Patients with myeloproliferative neoplasms identified and followed in French Hospitals. Patients could be followed for polycythemia vera or essential thrombocythemia or primary myelofibrosis.

Distribution of the questionnaire to each patient with myeloproliferative neoplasm (treated or not) suffering from aquagenic pruritus.

Analyse of each characteristic of the aquagenic pruritus by a statistician and publication at the end.

Enrollment: 170 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients with one of three non-chromosomal Philadelphia-positive myeloproliferative neoplasms: polycythemia vera (PV), essential thrombocythemia (ET), and primary myelofibrosis (PMF).
• Suffering (or having suffered) from aquagenic pruritus.
• No age limit, but major
• Patient having formulated his non-opposition

Exclusion criteria

• Patients with MPN with non-aquagenic pruritus,
• Patients with another hematologic disease and aquagenic pruritus
• Patients unable to complete the questionnaire.
• Patients with physical or mental disabilities to formulate non-opposition
• Refusal of participation