Assessment of Functional Independence and Quality of Life in Adolescents With Spina Bifid

Azienda USL Reggio Emilia - IRCCS

Status: Active, not recruiting

Conditions: Spinal Dysraphism

Study type: Observational

Funder types: Other

Identifiers

NCT00966927

UDGEE-SPINA BIFIDA

Details and patient eligibility

About

The purpose of this study is to investigate the level of functional independence and the quality of life of adolescents and young adults with spina bifid in an Italian population.

Full description

We submitted the Quality of Life in spina bifid Questionnaire to subjects who participated in the study and the Spinal Cord Independence Measure to the parents of subjects.

Enrollment: 41 patients

Sex: All

Ages: 14 to 21 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• recurrence of clinic control in Unit for Spina Bifid in Parma
• 14-21 years old

Exclusion criteria

• subjects unable to understand the items of the questionnaire (mental retardation and need for help at school )
• subjects without any caregiver

Trial design

41 participants in 1 patient group

subjects with spina bifid

Description:

subjects with spina bifid between 14 and 21 years old referred to Unit for Care of Spina Bifid Hospital of Parma