Autism in Adult Patients and the Effects on Caregivers

Sheba Medical Center

Status: Unknown

Conditions: Autism

Study type: Observational

Funder types: Other

Identifiers

NCT00367107

SHEBA-06-4169-RG-CTIL

Details and patient eligibility

About

Background: The number of adults with autism is expected to rise significantly in the near future, due to two main reasons: First, a dramatic increase in the estimates of the prevalence of autism starting in the mid 1980s; Second, the clinical diagnosis of autism was first introduced during the 1950s, and those diagnosed with autism back then are only now entering middle age. Few studies, however, have focused on the outcomes of adult autistic individuals, and very little is known about the course of autism in adulthood and on the familial burden resulting from caring for an autistic adult. We therefore propose to study adult outcomes in autism, and to examine the influence of raising an autistic individual on the parents.

Working hypothesis and aims: The primary objectives of the study are:

1. Determine clinical status and functioning of autistic adults.
2. Study the influence of raising and caring for an individual with autism on the well-being of the parents.

Enrollment: 240 estimated patients

Sex: All

Ages: 30 to 45 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Autism or autism spectrum disorder
• Understands the informed consent
• Hebrew Speaker

Exclusion criteria

• Severe acute or chronic illness
• Substance abuse
• In control subjects: Autism or autism spectrum disorder in subject or siblings
• In control subjects: participating sibling