Barriers to Care and QOL for CCCA Patients

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Northwestern University

Status

Completed

Conditions

Scarring Alopecia
Central Centrifugal Cicatricial Alopecia
Central Centrifugal Scarring Alopecia

Treatments

Other: 53-Item Survey

Study type

Observational

Funder types

Other

Identifiers

NCT03044782
SP070316

Details and patient eligibility

About

The purpose of the current project is twofold; first to determine what personal, historical, logistical, and environmental factors preclude women from obtaining medical care for CCCA hair loss. Because damage from CCCA is irreversible, early identification and treatment is paramount to limiting the negative ramifications of the disease. Second, to investigate how CCCA hair loss, a common occurrence in the Black population, can be a significant psychological impediment to lives of affected Black women. Based on previous research on the psychosocial impact of generalized hair loss in Black women, it is fair to consider that CCCA hair loss also leads to problems with self-esteem and participation in daily life activities. This research, the first of its kind, will add to existing knowledge of CCCA by investigating the quality of life and barriers to care of patients with this condition. The goal of this study is to illuminate what stands in the way of secondary and tertiary prevention of CCCA patients and tailor treatment strategies to address their needs. The results of this study will be instrumental in modifying dermatology resident training, adding to existing dermatology management guidelines, and even developing public health advocacy programming.

Enrollment

34 patients

Sex

All

Ages

18+ years old

Volunteers

Accepts Healthy Volunteers

Inclusion criteria

  • Evaluated in the Northwestern Dermatology Department between October 1, 2015 and September 30, 2017.
  • Evaluated by any faculty physician.
  • Diagnosed with CCCA.
  • Age 18 or older.
  • All subjects must have given signed informed consent prior to participation in study.

Exclusion criteria

Non-English speakers (interpreters not available)

Trial contacts and locations

0

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Data sourced from clinicaltrials.gov

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