Better Living With Non-memory-led Dementia

University College London (UCL)

Status: Completed

Conditions: Primary Progressive Aphasia; Alzheimer Disease; Frontotemporal Dementia

Treatments: Behavioral: Better living with non-memory led dementia course

Study type: Interventional

Funder types: Other

Identifiers

NCT05525377

RDSImpact_ws4feasibility

Details and patient eligibility

About

This is a feasibility study on the effects of an online-based training and education programme for carers of people with posterior cortical atrophy (PCA), primary progressive aphasia (PPA) and behavioural-variant frontotemporal dementia (bvFTD).

Full description

The purpose of this study is:

To evaluate the feasibility of an online training course for carers of people with PCA, PPA, and bvFTD. Feasibility measures will focus on the recruitment process and measurement tools.

To determine the acceptability of an online training course for carers of people with PCA, PPA and bvFTD.

The study will involve 6 online modules over the course of 7 weeks. All sessions will take place over the internet, using an online platform. A research team member (facilitator) will be available to assist participants over the course completion.

Enrollment: 31 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

1. . Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility.
2. . The care recipient has to have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention).

Exclusion criteria

1. . Those unable to comprehend written English
2. . Those with no access to the internet

Trial design

Primary purpose: Treatment

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

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31 participants in 2 patient groups

Intervention

Experimental group

Description:

Subjects in the intervention group receive access to an online training and educational phenotype-specific programme on how to support their relative with non-memory-led dementia. The online course consists on 6 modules to complete in 7 weeks. A course facilitator is available throughout the duration of the intervention to support participants.

Treatment:

Behavioral: Better living with non-memory led dementia course

Treatment as usual (TAU)

No Intervention group

Description:

The "treatment as usual" group does not receive access to the educational programme.