Better Living With Non-memory-led Dementia

University College London (UCL) logo

University College London (UCL)

Status

Completed

Conditions

Primary Progressive Aphasia
Alzheimer Disease
Frontotemporal Dementia

Treatments

Behavioral: Better living with non-memory led dementia course

Study type

Interventional

Funder types

Other

Identifiers

NCT05525377
RDSImpact_ws4feasibility

Details and patient eligibility

About

This is a feasibility study on the effects of an online-based training and education programme for carers of people with posterior cortical atrophy (PCA), primary progressive aphasia (PPA) and behavioural-variant frontotemporal dementia (bvFTD).

Full description

The purpose of this study is: To evaluate the feasibility of an online training course for carers of people with PCA, PPA, and bvFTD. Feasibility measures will focus on the recruitment process and measurement tools. To determine the acceptability of an online training course for carers of people with PCA, PPA and bvFTD. The study will involve 6 online modules over the course of 7 weeks. All sessions will take place over the internet, using an online platform. A research team member (facilitator) will be available to assist participants over the course completion.

Enrollment

31 patients

Sex

All

Ages

18+ years old

Volunteers

Accepts Healthy Volunteers

Inclusion criteria

  • . Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility.
  • . The care recipient has to have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention).

Exclusion criteria

  • . Those unable to comprehend written English
  • . Those with no access to the internet

Trial design

31 participants in 2 patient groups

Intervention
Experimental group
Description:
Subjects in the intervention group receive access to an online training and educational phenotype-specific programme on how to support their relative with non-memory-led dementia. The online course consists on 6 modules to complete in 7 weeks. A course facilitator is available throughout the duration of the intervention to support participants.
Treatment:
Behavioral: Better living with non-memory led dementia course
Treatment as usual (TAU)
No Intervention group
Description:
The "treatment as usual" group does not receive access to the educational programme.

Trial contacts and locations

0

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Data sourced from clinicaltrials.gov

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