Burden of Cancer in Children: A Pilot Study to Investigate the Impact and Content of Video Illness Narratives
Status
Conditions
Treatments
Details and patient eligibility
About
In order to gain a greater understanding of the full experience of children with life-threatening illness, this study will provide video cameras to ten to fifteen 10-18 years olds in active treatment for cancer, and instruct them to make video illness narratives over the course of 1-3 months. The narratives will be studied as an intervention; each of the participants will be administered a measure of physical symptoms (the Memorial Symptom Assessment scale 10-18) and a measure of self-esteem (the Rosenberg Self-Esteem Scale). The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words. Our hypothesis is that these narratives will provide insight into the lives of children with cancer, increase their self-esteem, and decrease symptom distress, and improve communication between patients and their doctors.
Full description
In addition to the above outcome measures:
The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- Diagnosed with cancer
- Age 10-18
- In active treatment for cancer
- Followed at the Strong Memorial Hospital/Golisano Children's Hospital
Exclusion criteria
- Non-English Speaker
- Cognitively impaired so as to make data collection difficult
Trial design
Primary purpose
Allocation
Interventional model
Masking
11 participants in 1 patient group
Trial contacts and locations
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Data sourced from clinicaltrials.gov
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