Cancer Care Companion

The Washington University

Status

Enrolling

Conditions

Pediatric Cancer

Treatments

Other: Cancer Care Companion

Study type

Interventional

Funder types

Other

NIH

Identifiers

NCT07278778

1R21CA290223-01A1 (U.S. NIH Grant/Contract)

202601022

Details and patient eligibility

About

This study invites parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool.

Full description

High-quality communication between clinicians and parents is critical to providing optimal care for pediatric cancer. This study engages parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool. Parent participants will be given 3 months of access to Cancer Care Companion, after which the participant(s) will complete a semi-structured interview. Participants will also complete a survey of validated measures before and after the intervention.

Enrollment

40 estimated patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion and exclusion criteria

Eligibility Criteria for Parents:

Parents of children with cancer will be enrolled if they meet the following criteria:

They are a legal guardian of a child diagnosed with cancer in the prior 4 weeks.
The child plans to receive or currently receives cancer directed therapy at St. Louis Children's Hospital.
The parent or legal guardian has access to internet through a computer or smart phone.
Speaks and reads in English
The parent or legal guardian agrees to enroll in Epic MyChart to access a proxy portal for their child.

Eligibility Criteria for Clinicians:

Clinicians with patients who have parents participating may be enrolled. Clinician participants will be employed at SLCH or Washington University School of Medicine (WUSM). The clinicians will include physicians, nurse practitioners, and nurse coordinators from the leukemia/lymphoma, brain tumor, and solid tumor teams in order to represent the breadth of pediatric cancer diagnoses.