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CAP48 - Autism in Children and Adolescents (CAP48-ASD)

U

Université Catholique de Louvain

Status

Enrolling

Conditions

Autism Spectrum Disorder

Treatments

Other: inclusion in the register

Study type

Observational

Funder types

Other

Identifiers

NCT06149468
CAP48 - TSA

Details and patient eligibility

About

Evaluation and follow-up of children diagnosed with an autism spectrum disorder in French-speaking Belgium in order to optimize diagnostic protocols, the quality of care required and its accessibility, and to determine the impact of an autism spectrum disorder on schooling, family and society.

Full description

The aims of the research project:

  • To collect a wide range of data in order to improve knowledge of children with autism spectrum disorder (ASD) in French-speaking Belgium by prospectively including all children and adolescents making a request to the centres of reference. The creation of a common database will make it possible to collect general socio-demographic, geographical and epidemiological data, to characterise the different profiles and to accurately monitor developmental trajectories.
  • Evaluate the feasibility and practical implementation of the treatment proposed following a diagnosis of ASD in a child.
  • Implement protocols to improve the quality of care for beneficiaries.
  • To enable the development of fundamental research protocols. Many questions remain unanswered about the genetic, neuro-cognitive and linguistic characteristics of autism. Only rigorous studies carried out on large, carefully defined samples can advance research.
  • Increase public knowledge and understanding of the ASD.

Enrollment

500 estimated patients

Sex

All

Ages

Under 18 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

  • children/adolescents (under 18 years of age) who apply to an autism reference center or who are followed up in an autism reference center from French-speaking region of Belgium.

Exclusion criteria

  • refusal by the family to allow their child's data to be included in the database.

Trial design

500 participants in 1 patient group

ASD group
Description:
child/adolescent (under 18 years of age) applying to an autism reference center or being followed up in an autism reference center
Treatment:
Other: inclusion in the register

Trial contacts and locations

1

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Central trial contact

Marie-Cécile Nassogne, Prof; Marine Houssa, PhD

Data sourced from clinicaltrials.gov

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