CAre of Patients With PArenteral Nutrition At Home (CAPANAH)

Catholic University (KU) of Leuven

Status: Completed

Conditions: Intestinal Lymphomas; Radiation Enteritis; Chronic Diarrhea; Crohn's Disease; Peritoneal Carcinomatosis With Intestinal Occlusion

Study type: Observational

Funder types: Other

Identifiers

NCT01545063

S54137

Details and patient eligibility

About

This research aims to give an overview of a number of aspects related to the quality of care for adult patients on home parenteral nutrition.

Concretely this study follows up different aspects on different moments in the care of the patient pathways:

• process indicators concerning indication, parenteral nutrition, training, team access roads and the succession of complications
• Outcome indicators
• the health-related quality of life
• discrepancies in medication use
• the role of the different health care providers

Full description

Adult patients on HPN will be contacted by phone at three different time moments after their discharge to ask them about indicators, quality of life and discrepancies in medication use. After the follow-up, medical dossiers will be consulted to know which indicators are followed in practice.

The role of the different health care providers will be investigated by face-to-face interviews with different healthcare professionals.

Enrollment: 39 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients in Flanders who speak Dutch, are older then 18 years and are able to give an informed consent.

Exclusion criteria

• Patients who are younger then 18 years.