Caregiver Burden Within the Ambulatory Extended Recovery (AXR) Patient Population

Memorial Sloan Kettering Cancer Center (MSK)

Status: Completed

Conditions: Caregiver Burden

Treatments: Behavioral: The Caregiver Quality of Life - Cancer (CQOLC); Behavioral: Caregiver Reaction Assessment (CRA)

Study type: Observational

Funder types: Other

Identifiers

NCT02501785

15-145

Details and patient eligibility

About

The purpose of this study is to understand the level of caregiver burden related to caring for a patient who goes home within the first 24 hours following surgery. As the caregiver they are providing care to a family member, friend, or neighbor. Even when not formally trained, the care they provide is important to the patient's recovery. Providing care in this manner can be stressful. This study will help us understand what aspects of the patient's recovery are most difficult for the caregiver.

Enrollment: 47 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Caregiver/patient pairs undergoing surgery for an indication tracked within the Breast, Gynecology, Head and Neck, and Urology AXR program
• English speaking
• Patients willing to provide demographic, surgical, and outcome information
• Caregivers willing to provide demographic, socioeconomic, and caregiver experience information
• Caregivers willing to complete the caregiver burden measurement scales

Exclusion criteria

• Patients undergoing surgery within the AXR pathway that do not have a caregiver
• Non-English speaking patients or caregivers
• Patients unwilling to provide demographic and surgical information
• Caregivers unwilling to provide demographic, socioeconomic, or caregiver experience information or unwilling to complete the caregiver burden measurement scales

Trial design

47 participants in 1 patient group

patient and caregivers

Description:

This is a prospective cohort study. Four questionnaires will be used to collect data from caregivers: demographic and socioeconomic data will be collected from the caregiver before the patient's surgery, and caregiver burden information will be collected 15 (+/- 3) days after surgery.

Treatment:

Behavioral: Caregiver Reaction Assessment (CRA)

Behavioral: The Caregiver Quality of Life - Cancer (CQOLC)