Caregivers of Children With Repaired Esophageal Atresia-tracheoesophageal Fistula

Hacettepe University

Status: Completed

Conditions: Dysphagia; Quality of Life

Treatments: Other: Quality of life assessment

Study type: Observational

Funder types: Other

Identifiers

NCT03889041

Dysphagia in esophagealatresia

Details and patient eligibility

About

Children with esophageal atresia and tracheoesophageal fistula (EA-TEF) may experience feeding and swallowing difficulties, which result in stressful interactions between children and caregivers, and potentially impact the concerns of caregivers. The aim of this study was to assess concerns of caregivers of children with EA-TEF related to feeding-swallowing difficulties.

Full description

Children with repaired esophageal atresia-tracheoesophageal fistula (EA-TEF) experience some degrees of feeding and swallowing difficulties Feeding and swallowing difficulties cause aspiration-induced recurrent pneumonia, malnutrition, dehydration and stressful interactions with their caregivers. There is lack of knowledge regarding the concerns of caregivers of children with EA-TEF related to feeding and swallowing disorders.Therefore, the aim of this study was to assess concerns of caregivers of children with EA-TEF related to feeding-swallowing difficulties.

Enrollment: 64 patients

Sex: All

Ages: 20 to 50 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Having a child with EA-TEF
• Having a child with swallowing disorders aged between 6 months-18 years

Exclusion criteria

• Having a child without swallowing disorders

Trial design

64 participants in 1 patient group

Caregivers of children with EA-TEF

Description:

Caregivers of children with esophageal atresia and tracheoesophageal fistula will be included in the study.

Treatment:

Other: Quality of life assessment