Caregivers Preparing for Their Own Health Care Emergency

University of California (UC) Davis

Status

Enrolling

Conditions

Caregiver Burden

Dementia

Treatments

Behavioral: Coaching Sessions

Study type

Interventional

Funder types

Other

NIH

Identifiers

NCT06635876

2180909

1R21AG089840-01 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Enrollment

68 estimated patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Must be 18 years of age or older at the time of signing the informed consent
Must self-identify as the spouse or partner of the PWD
Must provide some caregiving to a PWD
Must live in the same dwelling as the PWD

Exclusion criteria

Diagnosis of dementia
Unable to use or does not have access to a computer
Complete deafness or blindness and/or unable to use a telephone
Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
Unable to follow directions
Unable to read or write in English
Participation in prior study involving the EPT