Cerebral Palsy Hip Health Related Quality of Life
Status
Conditions
Treatments
Details and patient eligibility
About
Children with cerebral palsy are at an increased risk of having their hips move partially or completely out of joint. This can cause pain and restrict movement at the hip, making sitting in a wheelchair uncomfortable and make personal care difficult. This condition may be treated with surgery. Surgeons use x-rays taken before and after the surgery to determine whether or not the surgery has been successful. However, it is also important to know whether the surgery has improved life from the child or the caregiver's point of view. The investigators will also evaluate if waiting for surgery affects the child. This information will be added to results from a physical exam and an evaluation of the child's x-rays for a more complete picture of how this surgery impacts the lives of our patients. It is predicted that that the health-related quality of life of children with cerebral palsy will improve following surgery.
Full description
HRQoL will be measured using the Child Health Index of Life with Disabilities (CPCHILD). Our specific hypothesis is that health related quality of life, as measured by the CPCHILD will change by at least a mean of 10 points from pre- to post-surgery.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- Ages 4-18
- Undergoing surgical treatment for hip subluxation or dislocation
- Diagnosis of cerebral palsy or similar condition causing motor impairment
- Consent to participate
Exclusion criteria
- Diagnosis of neuromuscular disorders other than cerebral palsy
- younger than 4, older than 18
- Reimer's migration percentage <40%
Trial design
31 participants in 1 patient group
Trial contacts and locations
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Data sourced from clinicaltrials.gov
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