Challenges and Concerns Faced by Parents of Children With Cleft Lip and/or Palate

Ain Shams University

Status: Completed

Conditions: Cleft Lip and Palate

Treatments: Diagnostic Test: Interview- based questionnaire

Study type: Observational

Funder types: Other

Identifiers

NCT05730946

1137

Details and patient eligibility

About

Cleft lip and/or palate (CLP) are the most common oro-facial congenital anomalies. These anomalies have an impact on feeding, speech and speech development, facial aesthetics & oral health, all of which are factors that heavily impact the quality of life of CLP patients. CLP also has an effect on the families' social and psychological health.

Qualitative research helps understand the perspectives of the participants by exploring the psycho-social aspects of care. Phenomenological approach is a qualitative research method that aims to borrow participants' lived experiences to better understand a specific phenomenon. Currently, there is no clear understanding of the fears, anxieties, and challenges faced by parents of CLP patients in Egypt.

Enrollment: 12 patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

• Parents of Patients with non-syndromic CLP.

Exclusion criteria

• Parents of Patients presenting with dental pain.

Trial design

12 participants in 1 patient group

Egyptian parents of cleft lip and/ or palate (CLP) patients

Description:

Egyptian parents of CLP patients presented to the cleft lip \& palate clinic at Ain Shams university.

Treatment:

Diagnostic Test: Interview- based questionnaire