Chronic Obstructive Pulmonary Disease Patient Preferences Survey

McGill University

Status: Completed

Conditions: Pulmonary Disease, Chronic Obstructive

Treatments: Other: Patient Survey

Study type: Observational

Funder types: Other; Industry

Identifiers

NCT02970422

15-203-MUHC

Details and patient eligibility

About

The purpose of this study is to distribute a questionnaire created for individuals living with chronic obstructive pulmonary disease (COPD) to assess their activities, participation, and healthcare and COPD-related research priorities. The data collected will be compared across diagnosed COPD stages and disease severity to determine the extent to which adults with COPD participate in the listed activities and identify their primary research and healthcare related priorities. The questionnaire was originally developed based on past research then verified by a panel of COPD and participation experts; as well as, individuals living with COPD in the form of focus groups. The questionnaire will now be administered to 200 individuals living COPD (50 in each GOLD stage) at three sites across Montreal where clinical data for each participant will be available. This phase will help establish the reliability of the questionnaire.

Enrollment: 200 patients

Sex: All

Ages: 40 to 90 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Clinical diagnosis of COPD
• English or French speaking
• Patient at one of the three participating sites with medical chart

Exclusion criteria

• No diagnosis of COPD by a healthcare professional
• Unable to communicate in English or French
• Unable to provide informed consent
• No medical chart information at one of the three participating sites

Trial design

200 participants in 4 patient groups

Quartile 1 [Mild]

Treatment:

Other: Patient Survey

Quartile 2 [Moderate]

Treatment:

Other: Patient Survey

Quartile 3 [Severe]

Treatment:

Other: Patient Survey

Quartile 4 [Very Severe]

Treatment:

Other: Patient Survey