Clinical Presentation and Renal Outcome of Patients With Tuberous Sclerosis Complex and/or Renal Angiomyolipoma in the Great West Region of France (TSAR)

Regional University Hospital Center (CHRU)

Status: Enrolling

Conditions: Tuberous Sclerosis Complex

Study type: Observational

Funder types: Other

Identifiers

NCT02887781

TSAR (RB 14.055)

Details and patient eligibility

About

This study aims to investigate the factors (clinical, care-related and genetic) affecting renal outcome in patients with TSC (Tuberous sclerosis complex)

Enrollment: 150 estimated patients

Sex: All

Ages: 8+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion criteria of study participants

• Patient presenting with an isolated angiomyolipoma or
• Patient presenting with tuberous sclerosis complex combined with an angiomyolipoma or
• Patient presenting with tuberous sclerosis complex
• Patient not objecting to the study

Exclusion criteria of study participants

■Patient objecting to the study