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Clinical Trial - Analyzing Participation Experiences Of Amyotrophic Lateral Sclerosis Patients

P

Power Life Sciences

Status

Not yet enrolling

Conditions

ALS
Amyotrophic Lateral Sclerosis

Study type

Observational

Funder types

Industry

Identifiers

NCT05423678
12207799

Details and patient eligibility

About

Clinical trial participation has always been substantially skewed toward certain demographic groups. However, there has been little study on whether trial qualities impact participation in either a positive or negative way. The goal of this research is to identify the characteristics that consistently restrict patients' ability to participate in or complete a trial in which they were initially interested. This data will be analyzed via a number of demographic lenses in order to find trends that could benefit future ALS sufferers.

Enrollment

500 estimated patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

  • Lives in the United States
  • Is 18+ years old
  • Participant has a diagnosis of Amyotrophic Lateral Sclerosis (ALS)
  • Participant has enrolled in an interventional clinical for ALS (self-reported)

Exclusion Criteria

  • Inability to perform regular electronic reporting
  • Patient does not understand, sign, and return consent form
  • No diagnosis of Amyotrophic Lateral Sclerosis (ALS) confirmed

Trial design

Trial documents
1

Trial contacts and locations

0

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Central trial contact

Michael B Gill

Data sourced from clinicaltrials.gov

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