Communication Training for Caregivers In Advanced Care Planning

Memorial Sloan Kettering Cancer Center (MSK)

Status

Completed

Conditions

Primary Malignant Brain Tumors

Advanced Care Planning

Treatments

Other: Communication training Part 1 (no longer recruiting)

Other: Enhanced usual care

Other: Questionnaires

Other: Communication training Part II

Study type

Observational

Funder types

Other

Identifiers

NCT04171895

19-398

Details and patient eligibility

About

The purpose of this research study is to develop and test a new communication training to help caregivers communicate more effectively with their loved ones and healthcare professionals about advanced care planning.

Enrollment

49 patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Part 1:

Informal caregivers:

Current self-reported informal cancer caregivers (IC) to a patient with a primary malignant brain tumor as per clinician judgment or as per EMR
English fluency: Self-report by participant identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
age ≥ 18
has access to a computer or smartphone with a webcam and internet connection

Patients:

English-speaking as per EMR
Able to provide informed consent, a determination that will be made in assistance with the patient's medical team.

Part II:

Informal caregivers:

Current self-reported IC to an MSK patient with a (1) primary malignant brain tumor or (2) leptomeningeal metastasis of a solid tumor, as per clinician judgment or as per EMR.
English fluency: Self-report by identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
Age >18 as per self report
Access to a computer or smartphone with a webcam and internet connection as per self report

Exclusion criteria