Comparison of Two Web-Based Education/Support Programs for Partner Caregivers of People With Spinal Cord Injury

Kessler Foundation

Status: Unknown

Conditions: Spinal Cord Injuries; Spinal Cord Diseases

Treatments: Other: Web-Based Support and Education Program 1; Other: Web-Based Support and Education Program 2

Study type: Interventional

Funder types: Other

Identifiers

NCT04827095

L-1097-20

Details and patient eligibility

About

The purpose of this research study is to compare the effect of two different types of education and support programs for partner caregivers of people with spinal cord injury (SCI).

Full description

SCI particularly affects partners (spouses or other types of significant others), as they face changes in relationship dynamics and identity as they take on a caregiver role. The purpose of this research study is to compare the effect of two different types of education and support programs for partner caregivers of people with spinal cord injury (SCI).

Enrollment: 40 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• At least 18 years old
• Fluent in English (reading and writing)
• Romanic partner of a person with SCI (regardless of martial status) for at least one year prior to injury
• Live in a private residence with their partner with SCI
• Partner is at least 3 months post discharge from inpatient rehabilitation
• At least 6 months since their partner's injury
• Provide care to their partner with SCI on a daily basis
• Have access to the internet in a private location

Exclusion criteria

• Participant reports a diagnosis of a schizoaffective disorder, bipolar personality disorder, or severe depression
• History of hospitalization for depression treatment

Trial design

Primary purpose: Other

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Double Blind

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40 participants in 2 patient groups

Web-Based Support and Education Program 1

Experimental group

Description:

The support and education program involves 6 weeks of web-based classes (75-90 minutes per class) given once per week with weekly homework assignments of approximately one hour per week.

Treatment:

Other: Web-Based Support and Education Program 1

Web-Based Education and Support Program 2

Experimental group

Description:

The support and education program involves 6 weeks of web-based classes (75-90 minutes per class) given once per week with weekly homework assignments of approximately one hour per week.

Treatment:

Other: Web-Based Support and Education Program 2