Concerns of Children Whose Parents Have Cystic Fibrosis (MUCOKIDS)

Assistance Publique - Hôpitaux de Paris

Status

Completed

Conditions

Cystic Fibrosis

Treatments

Behavioral: Focus groups

Behavioral: Individual interviews

Study type

Observational

Funder types

Other

Identifiers

NCT04702386

APHP190326

Details and patient eligibility

About

As more and more patients with cystic fibrosis (CF) become parents, we have studied parenting concerns in this serious chronic disease in a first study (MucoPar) which is ongoing.

The current study (MucoKids) is an extension of the previous MucoPar study and aims to explore and collect the perceptions, expectations and needs of children whose one parent has CF.

This will be done in the context of individual interviews or in several small groups of children led by a psychologist who will encourage them to develop what constitutes to be the child of somebody with CF.

The collected information should make it possible to develop and propose adapted medico-psycho-social interventions, if necessary, in connection with patient associations.

Full description

Life expectancy has improved significantly in cystic fibrosis in recent years. From pediatric disease, it has become a disease of the adult, with the emergence of new issues, such as becoming a parent. Parent patients still face the risk of complications and death while their child is still young. However, there is very little data in the literature on parenting in cystic fibrosis. In a first study which is ongoing (43 patients out of the 50 planned have been included), we intended to study parenting, considering the sick parent's point of view.

However, this question does not only concern parents and their spouses. It is also fundamental to take into account the experience of the children, to understand their experiences and their own needs in this context of serious illness of a parent with limited life expectancy.

Therefore, the purpose of this study is to explore and collect the perceptions, expectations and needs of children whose one parent has CF. Children are eligible from the age of 6 if their parents agree.

Children will have semi-structured individual interviews or will participate in focus groups with the study psychologist in order to express their feelings, difficulties, expectations and needs in living with a parent who has CF.

Thematic analysis of the content will first be done separately for individual interviews and focus groups, and a global synthesis will be carried out.

Enrollment

27 patients

Sex

All

Ages

6+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Have a parent with CF cared at one of the 2 adult CF centres participating into the study
Have the authorization of the parent with CF if the child is an adult and of both parents for subjects less than 18 years old
Be ay least 6 years old
Have a good level of French and good speaking skills for adolescents and adults
Have a level of French and oral expression skills adapted to their age group for the youngest

Exclusion criteria

Psychiatric pathology (borderline state, bipolarity and other psychotic disorders) in their parents or themselves
Serious somatic disease not related to cystic fibrosis in their parents or themselves