COPD Patient-Powered Research Network (COPD PPRN)

COPD Foundation

Status: Enrolling

Conditions: Chronic Bronchitis; Emphysema; Chronic Obstructive Lung Disease; Chronic Obstructive Pulmonary Disorder

Treatments: Other: Patient Reported Outcomes

Study type: Observational

Funder types: Other

Identifiers

NCT02803242

COPDPPRN

Details and patient eligibility

About

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Enrollment: 75,000 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• 18 years or older that says yes to one of the following:
• COPD diagnosis
• Current or former smoker
• Family history of respiratory disease
• Symptomatic of respiratory disease

Exclusion criteria

• Non-English speaking