Correlation Between Respiratory Impairment and Phonemes Alteration in Dystrophinopathy Patients With Respiratory Failure (PHONORESPI)

Centre d'Investigation Clinique et Technologique 805

Status: Completed

Conditions: During the Medical Appointment, the Speech Therapist Will Perform Phonetic Tests

Treatments: Behavioral: phonetic tests

Study type: Observational

Funder types: Other

Identifiers

NCT02411370

PHONORESPI n°CPP 14079

Details and patient eligibility

About

Communication is essential for patients quality of life because it impact on patients care quality. Neuromuscular diseases, caracterised by motor damages, hinder non-verbal communication of the patient. Therefore, speech must to be functional.

However, correlation between respiratory failure and voice quality is not very well known. The aim of the study is to search a link between respiratory failure and speech impairment in patients with neuromuscular diseases.

Enrollment: 30 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Respiratory autonomy at least 1 hour per day
• Stable patient during the study
• Patient with education at least up to secondary school

Exclusion criteria

• Refusal to participate
• Inability to cooperate
• Tracheostomized patients
• Mechanic ventilation - dependant patients
• Respiratory autonomy lower than 1 hour per day
• Patients with hemodynamic instabillity
• Patient insured under the French social security system