Costs of Care and Adherence to Treatment for Cystic Fibrosis (COMURA MUCOBS)

Civil Hospices of Lyon

Status: Completed

Conditions: Cystic Fibrosis

Study type: Observational

Funder types: Other

Identifiers

NCT02832479

69HCL15_0698

Details and patient eligibility

About

Evolution of medical care for patients with cystic fibrosis appeared in recent years: prolongation of life expectancy with consequently increased comorbidities and the use of lung transplantation, systematic neonatal screening of new born since 2002, prescription of expensive new molecules or new presentation. This evolution justifies to realize an update of statistics of costs of care and to assess adherence to treatment

Enrollment: 500 patients

Sex: All

Ages: Under 99 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients with cystic fibrosis,
• Followed by one of the cystic fibrosis center of the Rhône-Alpes region (pediatric and adult of Lyon and Grenoble)
• Affiliated to the general scheme of health insurance,
• And domiciled in the Rhône-Alpes region.

Exclusion criteria

• Transplanted patients