Couple and Spouse Caregiver in Huntington's Disease (COCOON)

University Hospital, Lille

Status: Terminated

Conditions: Huntington Disease

Study type: Observational

Funder types: Other

Identifiers

NCT04394767

2018_33

2018-A02046-49 (Other Identifier)

Details and patient eligibility

About

The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.

Enrollment: 48 patients

Sex: All

Ages: 30 to 70 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

For patient :

• HD, CAG > 36, motor UHDRS > 5
• Being able to communicate with the investigator

For both spouses :

• Living together since at least 5 years
• 30 to 60 years old

Exclusion criteria

For patient :

• Other chronic neurologic disorder

For both spouses :

• Psychiatric disease
• Unable to participate, incl read, understand and sign the informed consent