COVID-19 Pandemic and Parents of Disabled Children

Gaziosmanpasa Research and Education Hospital

Status: Completed

Conditions: COVID-19; Cerebral Palsy; Muscular Dystrophies; Disabilities Multiple

Treatments: Other: Difficulties lived by disabled children's parents in the period of COVID-19 pandemic

Study type: Interventional

Funder types: Other

Identifiers

NCT04525742

105

Details and patient eligibility

About

Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents.

In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.

Full description

To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.

Enrollment: 309 patients

Sex: All

Ages: 18 to 65 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Having disabled child/children
• Having ability and facility to use internet
• Having ability to read and write
• Having enough cognitive capacity to answer the questionnaire
• To accept to participate the research

Exclusion criteria

• Not having disabled child/children
• Not having ability and facility to use internet
• Not having ability to read and write
• Not having enough cognitive capacity to answer the questionnaire
• Not to accept to participate the research

Trial design

Primary purpose: Screening

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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309 participants in 1 patient group

Parents who have a disabled child or children

Other group

Description:

Parents having disabled child or children will be included in the research and it will be wanted to complete the survey questionary

Treatment:

Other: Difficulties lived by disabled children's parents in the period of COVID-19 pandemic