Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer

M.D. Anderson Cancer Center

Status: Not yet enrolling

Conditions: Medullary Thyroid Cancer (MTC); Cultural Adaptation

Treatments: Other: Interviews

Study type: Observational

Funder types: Other

Identifiers

NCT07142005

NCI-2025-04498 (Other Identifier)

2025-0198

Details and patient eligibility

About

To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.

Full description

Primary Objectives

1. To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1)
2. To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2)

Secondary Objectives

1. To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3)
2. To disseminate the educational tool to a broader population of Latino(a)s
3. To summarize the clinico-demographics of educational tool users

Enrollment: 40 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Provision of signed and dated informed consent form
• Males and females; Age: ≥18 years old
• Identified ethnicity as "Hispanic" or "Latino/Latina"
• Ability to read, write, and speak Spanish
• Those who are pregnant are eligible to participate
• Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor

Exclusion criteria

• Those < age 18
• Ethnic identity as non-Hispanic or non-Latino/a individual
• Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry