Determining the Needs of Aging People With Disabilities (PHV)

Centre Hospitalier Annecy Genevois

Status: Completed

Conditions: Disabled People; Aging; Mental Handicap

Treatments: Other: SMAF assessment

Study type: Interventional

Funder types: Other

Identifiers

NCT02735005

2015-A00642-47

Details and patient eligibility

About

Heterogeneous modalities of aging lead to describe three categories of elderly patients: 1-healthy without frailty, 2- healthy with frailty, 3- patients with chronic disease(s) and frailty. Frail people have a high risk of losing functional independence and as a consequence they require more help for day to day life. It is known in elderly that physical activities, nutrition, social environment are important to maintain functional independence.

For patients with disabilities, less is known about the occurence of dependance with aging. That is of growing importance because life expectancy of disabled patients has increased a lot during last decades, and because caregivers, often parents, also become elderly and frail.

So the investigators will require tools to anticipate prevention and supportive needs for this specific population.

The goal of this study is to evaluate if the participants (disabled patients over 40 years old) of a well-defined region in the south-east of France (400000 inhabitants), and to assess their needs, using the Functional Autonomy Measurement System (SMAF) developed for assessment of the elderly, by Rejean Hebert & Nicole Dubuc's team in Sherbrooke University (Quebec/Canada).

Enrollment: 741 patients

Sex: All

Ages: 40+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• adult 40 years or older

• must need help allocated by government social health services (Committee on Rights and Autonomy of Disabled People = french CDAPH)

• must live

  1. either in dedicated units or specialized homes (french medicalized care homes, or dedicated community homes)

  2. or at home but working in specialized dedicated centers (So called french Etablissement et Service d'Aide par le Travail) or requiring intervention of specialized services (Support Service for Social Life or Medical-Social Support Service for Disabled Adults)

     Exclusion Criteria:

• patient or patient's legal guardian opposed to participate

Trial design

Primary purpose: Health Services Research

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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741 participants in 1 patient group

SMAF assessment

Experimental group

Description:

Face to face interview for the Functional Autonomy Measurement System (SMAF) tool questionnaire For disabled patients living at home, the Social SMAF questionnaire is used in addition. Data related to care consumption of each enrolled patients are collected too.

Treatment:

Other: SMAF assessment