Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study (TRANSAD)

Assistance Publique - Hôpitaux de Paris

Status: Completed

Conditions: Transition Care

Study type: Observational

Funder types: Other

Identifiers

NCT02617030

PREPS 2013-NI 14003

Details and patient eligibility

About

Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.

Enrollment: 390 patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

• Youth with chronic diseases after transfer to adult care
• Parents or guardians of these youth.
• Professionals caregivers from pediatric services and adult services involved in transition

Exclusion criteria