Developing and Testing Culturally Based Educational Videos for Puerto Rican and African American Home Hospice Caregivers

Weill Cornell Medicine (WCM)

Status: Completed

Conditions: Caregivers of Patients on Hospice Care

Treatments: Behavioral: Caregiver educational videos for Puerto Rican caregivers; Behavioral: Caregiver educational videos for African American caregivers

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT06024278

22-04024661

3K76AG059997-03S1 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The investigators hypothesize that culturally based educational videos for Puerto Rican and African American home hospice caregivers will better inform caregivers in managing symptoms, preparedness, self-efficacy, and competence.

Full description

The clinical trial for this project is a cross-sectional study conducted with VNS Health hospice, Hospicio Toque de Amor, and Hospicio Luz Celeste. Names of Puerto Rican and African American caregivers receiving home hospice care will be referred to the study team by the site leader/hospice leadership at each hospice. Demographic data will be collected from each caregiver participant. Prior to showing participants the culturally tailored videos, a research member will administer a set of Likert style questions developed by the research team around comfort in managing symptom related issues. The same questions will be administered again post video intervention. In addition, the preparedness scale, chronic pain self-efficacy scale, and caregiving competence scale will be administered to participants pre and post video intervention. The PI will not be involved in the administering the intervention for this study. After the culturally tailored videos have been shown to the participant, a research member will also conduct an open-ended interview about content, reactions, attitudes, usefulness and limitations around each video. Interviews will be conducted in either English and/or Spanish.

Enrollment: 20 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• Family caregivers who identify themselves as Puerto Rican or African American
• English and/or Spanish speaking
• 18 year of age or older
• Currently receiving home hospice services with a patient

Trial design

Primary purpose: Treatment

Allocation: Non-Randomized

Interventional model: Parallel Assignment

Masking: None (Open label)

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20 participants in 2 patient groups

African American Hospice Caregivers

Experimental group

Description:

Culturally tailored educations videos will be administered to African American participants.

Treatment:

Behavioral: Caregiver educational videos for African American caregivers

Puerto Rican Hospice Caregivers

Experimental group

Description:

Culturally tailored educations videos will be administered to Puerto Rican participants.

Treatment:

Behavioral: Caregiver educational videos for Puerto Rican caregivers