Development,Validity and Reliability of a Caregiver Version of the Breathlessness Beliefs Questionnaire

Halic University

Status: Completed

Conditions: Parents; Cystic Fibrosis

Study type: Observational

Funder types: Other

Identifiers

NCT06289972

HUvbayraktaroglu1

Details and patient eligibility

About

The goal of this methodological study is to determine the reliability and validity of the The Breathlessness Beliefs Questionnaire Caregiver Version (BBQ-C) version in assessing dysfunctional breathlessness beliefs in caregivers of children with cystic fibrosis.

Full description

Cystic fibrosis (CF) is an inherited disease characterized by pulmonary involvement. Children with CF may have obstructive lung disease and related dyspnea, which may progress to respiratory failure and mortality. Dyspnea may lead to activity limitation. Parents who take care of children with CF may be protective of their children's social environment for some reasons such as the risk of infection. The Breathlessness Beliefs Questionnaire (BBQ) is a Turkish validated scale developed to assess dysfunctional beliefs about dyspnea. Based on the idea that parents may develop dysfunctional dyspnea belief behavior in their children with CF, the aim of this study was to develop a caregiver version of the BBQ (The Breathlessness Beliefs Questionnaire Caregiver Version-BBQ-C) and to investigate the validity and reliability of the scale in assessing dysfunctional dyspnea beliefs in parents of children with CF.

Enrollment: 42 patients

Sex: All

Ages: 25 to 75 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• To be between 25-75 years old,
• To be literate in Turkish,
• Being a mother, father or other caregiver of a child,
• Voluntarily agreeing to participate in the study,
• Be taking care of the child for at least one year

Exclusion criteria

• Having cognitive impairment at a level that prevents cooperation with the scales,
• Not living in the same household with a child with cystic fibrosis.