Discharge to Home and Chronic Illness Care Pilot
Status
Conditions
Treatments
Details and patient eligibility
About
The purpose of this study is to address a gap in knowledge needed for care of children with solid organ transplantation (SOT) and their parents by combining mHealth technology with an individualized family centered self-management intervention (referred to as myFAMI). This study is critical to the increased understanding of hospital to home transition and family management at home with the potential to transform the way clinicians approach the care of complex chronic illness children and families.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- parent's child has undergone a heart, kidney, or liver transplant and is being discharged home from the hospital
- the parent is English speaking (to date the tools being used have been validated for English participants only)
- parent is 18 years of age or older
- patient is 17 years of age and younger.
Exclusion criteria
- presence of significant communication or cognitive impairment on the part of the parent that would preclude completion of questionnaires based on self-report
- parent and child has experienced the discharge to home transition from a previous transplant.
Trial design
Primary purpose
Allocation
Interventional model
Masking
20 participants in 2 patient groups
Trial contacts and locations
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Data sourced from clinicaltrials.gov
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