Early Support and Physiotherapy for Children and Their Motor Skills (App-eMot-Quali)

University Hospital Center (CHU) Dijon Bourgogne

Status

Completed

Conditions

Cerebral Palsy

Infant

Neonatal

Treatments

Other: Semi-directive interview

Other: Focus group

Study type

Observational

Funder types

Other

Identifiers

NCT04523441

KRUMM APPARA 2019

Details and patient eligibility

About

The App-eMot-Quali project proposed here is the first phase in the implementation of a care pathway supported by a digital tool. It consists of a qualitative study allowing individual interviews to be conducted with parents of infants at high risk of cerebral palsy and health professionals in order to identify and precisely describe the needs and difficulties present during the child's rehabilitative care during the first months of life.

Enrollment

37 patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

For the parents:

Parents of children under 24 months of age at high risk of cerebral palsy who have given their oral consent.

Children at high risk of cerebral palsy are defined as :
- Premature children ≤ 31 WG + 6 days or birth weight less than 1000g.
- Children who have had a stroke or stage 2 or 3 hypoxia-ischemia according to the Sarnat classification.
The selection of parents may be retrospective with less than 24 months since hospital discharge.
For the health professionals:

Physiotherapists, psychomotricians, psychologists and doctors involved in the care of children at high risk of cerebral palsy.

Exclusion criteria

A person who is physically or cognitively unable to participate in a one-on-one interview or who does not have a sufficient command of the French language.
Parents aged <18 years
Parents in protective custody
Parents of children with major orthopedic or traumatic disorders unrelated to the high risk of cerebral palsy.
Parents of a child with a genetic disease.