Education Tools to Support Pediatric Survivor Care

Emory University

Status: Completed

Conditions: Pediatric Cancer; Cancer

Treatments: Behavioral: Electronic educational material

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT04257058

IRB00091839

R01CA218389 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

This study aims to evaluate the impact of electronic educational materials on adolescent and young adult (AYA) survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.

Full description

Despite increased risk for morbidity and mortality related to cancer treatment, over half of young adult survivors of childhood cancer do not engage in the recommended healthcare designed to detect late effects and secondary cancers. There is a scarcity of data on adherence to survivor-focused healthcare, particularly at the critical transition from pediatrics to adult care. In order to improve transition outcomes, the investigators need to create media to educate survivors about need for adherence to adult survivor healthcare.

This study aims to evaluate the impact of electronic educational materials on AYA survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.

Enrollment: 89 patients

Sex: All

Ages: 18 to 25 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Patients must be 18-25 years of age,
• Diagnosed with cancer at ≤ 18 years of age,
• ≥ 2 years since the last cancer treatment,
• seen at least once in the Aflac Cancer Survivor Program (CSP) in the past 2 years or transitioned out of the Aflac CSP to adult survivor care since 2013.

Exclusion criteria

• Patients will be excluded from participation in the study if the participant is non-English speaking.
• Young adult survivors who are cognitively impaired and unable to complete the questionnaires.
• Participants that do not consent to the recording of their interviews.

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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89 participants in 1 patient group

Electronic educational material

Experimental group

Description:

Participants in the trial included young adult survivors of childhood cancer. Participants completed an online pre-test survey via REDCap. After the pre-test is completed, participants review electronic media in REDCap. Study staff confirmed review of material and scheduled a post-test survey to be competed in REDCap two weeks after material is reviewed.

Treatment:

Behavioral: Electronic educational material