Effectiveness of Medical Management of Fibrous Dysplasia of Bone. (Efficience)

Civil Hospices of Lyon

Status: Completed

Conditions: Fibrous Dysplasia of Bone; McCune Albright Syndrome

Treatments: Other: Evaluation and analysis of clinical data

Study type: Observational

Funder types: Other

Identifiers

NCT05422833

370

Details and patient eligibility

About

The objective of our study was to assess the effectiveness of our reference center since its constitution.

In a retrospective cohort study, we compared the activity of our center, including the time elapsed between diagnosis and access to the center and the diagnostic delay of patients with fibrous dysplasia between two periods, 1996-2006 (before certification of our center) and 2007-2019 (after certification of our center).

Enrollment: 528 patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

We have included children and adults with FD/MAS who visited at least once in our center (outpatient and hospitalized patients). The diagnosis was established by an expert of the center, based on clinical, biological, imaging and/or histological arguments

Exclusion criteria

The absence of detectable bone lesion

Trial design

528 participants in 2 patient groups

Before

Description:

Children and adults with FD/MAS who visited at least once in our center (outpatient and hospitalized patients). and with the first visit in the center included between 1996 and 2006 - before certification of our center.

Treatment:

Other: Evaluation and analysis of clinical data

After

Description:

Children and adults with FD/MAS who visited at least once in our center (outpatient and hospitalized patients). and with the first visit in the center included between 2007 and 2019 - after certification of our center.

Treatment:

Other: Evaluation and analysis of clinical data