Effects of a Rehabilitation Programme Focused on Energy Management in People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa

Status

Completed

Conditions

Myalgic Encephalomyelitis (ME)

Chronic Fatigue Syndrome (CFS)

Treatments

Behavioral: Intervention Group

Study type

Interventional

Funder types

Other

Identifiers

NCT07363655

2024.063

Details and patient eligibility

About

The study focuses on rehabilitation nursing care for adults diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a home setting. The objective is to evaluate the effects of an individualised rehabilitation programme, which aims to empower participants to manage their energy effectively, observing the impacts on functionality and fatigue.

Full description

During the study, we collected sociodemographic data, information about the clinical evolution, patient perception of the disease. Instruments were applied to assess quality of life, functionality, and fatigue levels. This will allow to understand how to improve rehabilitation nursing care.

Enrollment

13 patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Portuguese-speaking individuals with age of 18 years or older;
Individuals with official residence in Portugal;
An official diagnosis of ME/CFS based on the NICE guidelines;
A Chalder's Fatigue Questionnaire (CFQ) score higher than 18 points.

Exclusion criteria

Individuals without official residence in Portugal;
Patients without a diagnosis of ME/CFS;
Patients with a diagnosis of ME/CFS whose case definitions used was not known;
Patients without a diagnosis of ME/CFS who had previously participated in any kind of rehabilitation programme, including pacing therapy, cognitive behavioural therapy or graded-exercise therapy.