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Emotions in the Communication and Relationship Styles of Parents With Hemophilic Children.

I

Institute of Hospitalization and Scientific Care (IRCCS)

Status

Enrolling

Conditions

Hemophilia A

Study type

Observational

Funder types

Other

Identifiers

Details and patient eligibility

About

Severe hemophilia is a rare, inherited, X-linked disorder. Currently, standard therapy involves ev infusion of drugs from a very young age.

The diagnosis of hemophilia is a traumatic event for the parents, even before the unborn child. The management of the hemophilia patient involves the whole family. Also in relation to its heredity.Focus on the ways in which parents of children with hemophilia manage their emotional experience.

Full description

Severe hemophilia is a rare, inherited, X-linked disorder. Currently, standard therapy involves ev infusion of drugs from a very young age.The diagnosis of hemophilia is a traumatic event for the parents, even before the unborn child. The management of the hemophilia patient involves the whole family. Also in relation to its heredity.Focus on the ways in which parents of children with hemophilia manage their emotional experience.he diagnosis of hemophilia brings with it, in parents, fears, guilt, overprotective temptations that push us to act rather than to narrate the meaning of that need of ours, caregiving modes that risk engaging our operational side at the expense of recognizing ourselves and our feelings and emotions. We have no reason to think that that traumatic stimulus installs in us an atypical mode of resorting to our emotional intelligence. Therefore, it becomes even more significant to study parent-child communication processes on this target, to observe whether and how the adult's emotional area finds its place and expression. On the results of this work, the foundations could be laid for subsequent observational or interventional studies.

Enrollment

10 estimated patients

Sex

All

Ages

10 to 18 years old

Volunteers

Accepts Healthy Volunteers

Inclusion criteria

  • Haemophilia A

Exclusion criteria

  • No Informed Conset

Trial design

10 participants in 1 patient group

patients with HA
Description:
20 parents with hemophilic children. The sample will consist of 10 mothers and 10 fathers.

Trial contacts and locations

1

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Central trial contact

Raimondo De Cristofaro, MD; Maria Basso, MD

Data sourced from clinicaltrials.gov

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