Empowering Cancer Survivors Through Information Technology

University of Minnesota (UMN)

Status: Completed

Conditions: Cancer Survivor

Treatments: Behavioral: UMFollowUp; Other: Standard of Care

Study type: Interventional

Funder types: Other

Identifiers

NCT01593618

2007NT078

Details and patient eligibility

About

This is a randomized controlled trial of a web-based informational intervention (UMFollowUp) for adolescent and young adult survivors of childhood cancer to improve cancer knowledge and psychosocial functioning.

Full description

Individuals randomly assigned to the control group will receive standard of care for the duration of their participation. This means they will continue to receive information regarding their diagnosis, treatments and ongoing health needs from their provider (no access to website).

Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a secure, HIPAA-compliant website.

All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months later to determine the impact of the web-based intervention.

Enrollment: 53 patients

Sex: All

Ages: 15 to 28 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• History of diagnosis of hematologic malignancy or malignant neoplasm, and in disease free remission at time of recruitment.
• Must be English-speaking and have access to a computer with internet access, and must have completed treatment at University of Minnesota Medical Center-Fairview for cancer.

Exclusion criteria

• Individual with significant visual impairments and neurologic/cognitive difficulties which limit their ability to see and under our outcome questionnaires or website content will be excluded from participation.

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Single Group Assignment

Masking: None (Open label)

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53 participants in 2 patient groups

Web-Based Intervention

Experimental group

Description:

UMFollowUp - web-based internet resource for information about their diagnostic histories, recommendations for follow-up care, and tips to enhance their treatment, psychosocial and physical well-being.

Treatment:

Behavioral: UMFollowUp

Standard of Care

Active Comparator group

Description:

Patients will receive information regarding their diagnosis, treatments, and ongoing health needs from their provider, but will not be provided access to the website.

Treatment:

Other: Standard of Care