Empowerment Intervention for Persons With Young Onset Dementia

Radboud University Medical Center

Status

Completed

Conditions

Dementia

Empowerment

Treatments

Other: Empowerment intervention

Study type

Interventional

Funder types

Other

Identifiers

NCT02937883

733050607

Details and patient eligibility

About

The purpose of this study is to evaluate the effects of an empowerment intervention for community-dwelling persons with young onset dementia and their informal caregivers.

Full description

This study focuses on the evaluation of an empowerment intervention developed for persons with young onset dementia and their informal caregivers. The empowerment intervention focuses on current capacities, maintenance of autonomy, and increasing the opportunities to feel useful. This pragmatic cluster randomized controlled trial aims to investigate (1) the effectiveness of the intervention concerning participants' well-being, quality of life, and behavioral issues, (2) the effect of the intervention on the informal caregivers' sense of competence and perceived distress, and (3) the impact of the intervention on healthcare costs. Furthermore, the investigators aim to study the feasibility of the intervention to frame an implementation strategy.

Participants in the intervention group will receive the intervention for 5 months. Participants of the control group receive care as usual.

Enrollment

60 patients

Sex

All

Volunteers

No Healthy Volunteers

Inclusion criteria

Diagnosed with dementia before the age of 65
Living at home (community-dwelling)

Exclusion criteria

Dementia is caused by Down's syndrome, Huntington's disease, HIV or alcohol-related dementia.
Limited contact between the person with dementia and the informal caregiver (<3 times a week)